MENANDS, N.Y. – March, 2011 -- World-class scientists, clinicians, caregivers, advocates, and government and industry leaders gathered this month to discuss genetic diseases of children and mobilize efforts to improve early diagnosis and health care services, and spur research for new therapies.
Convened by the New York State Department of Health (DOH) and sponsored by Health Research, Inc. (HRI) and others, the Genetic Diseases of Children: Advancing Research and Care conference brought 500 attendees to Manhattan on March 8 and 9, 2011. The meeting drew praise across the board -- from patients and parents, advocates and experts – and calls for future such forums.
Nicole Boice, an invited speaker and founder of the RARE Project, reported on the Network's blog that: "Most conferences discuss theories, postulate and talk a lot about 'what can and should be done' about a topic. The GDC Conference created an agenda that successfully worked to change that. The producers of...






