Supplemental Information to the NIH Policy for Data Management and Sharing: Protecting Privacy When Sharing Human Research Participant Data
Notice Number: NOT-OD-22-213
Release Date: September 21, 2022
Related Announcements: NOT-OD-22-214 – Supplemental Information to the NIH Policy for Data Management and Sharing: Responsible Management and Sharing of American Indian/Alaska Native Participant Data; NOT-OD-21-013 – Final NIH Policy for Data Management and Sharing; NOT-OD-21-014 – Supplemental Information to the NIH Policy for Data Management and Sharing: Elements of an NIH Data Management and Sharing Plan; NOT-OD-21-015 – Supplemental Information to the NIH Policy for Data Management and Sharing: Allowable Costs for Data Management and Sharing; NOT-OD-21-016 – Supplemental Information to the NIH Policy for Data Management and Sharing: Selecting a Repository for Data Resulting from NIH-Supported Research
Issued by: Office of The Director, National Institutes of Health (OD)
Purpose: NIH promotes the responsible sharing of scientific data consistent with protecting research participant privacy. To advance efforts under its new Data Management and Sharing Policy (DMS Policy), NIH is providing supplemental information assisting researchers in addressing privacy considerations when sharing human research participant data. This information is not intended to provide a guide for compliance with regulatory requirements nor is it establishing binding rules for NIH awardees, but instead provides a set of principles, best practices, and points to consider for creating a robust framework for protecting the privacy of research participants when sharing data.
The complete notice, including all supplemental information, can be viewed here: https://grants.nih.gov/grants/guide/notice-files/NOT-OD-22-213.html
Please direct all inquiries to: NIH Data Management and Sharing Policy inbox,
sharing@nih.gov
