Supplemental Information to the NIH Policy for Data Management and Sharing: Responsible Management and Sharing of American Indian/Alaska Native Participant Data

Notice Number: NOT-OD-22-214

Release Date: September 21, 2022

Related Announcements: NOT-OD-22-064 – Request for Public Comment on DRAFT Supplemental Information to the NIH Policy for Data Management and Sharing: Responsible Management and Sharing of American Indian/ Alaska Native Participant Data; NOT-OD-22-213 – Supplemental Information to the NIH Policy for Data Management and Sharing: Protecting Privacy When Sharing Human Research Participant Data; NOT-OD-21-013 – Final NIH Policy for Data Management and Sharing; NOT-OD-21-014 – Supplemental Information to the NIH Policy for Data Management and Sharing: Elements of an NIH Data Management and Sharing Plan; NOT-OD-21-015 – Supplemental Information to the NIH Policy for Data Management and Sharing: Allowable Costs for Data Management and Sharing; NOT-OD-21-016 – Supplemental Information to the NIH Policy for Data Management and Sharing: Selecting a Repository for Data Resulting from NIH-Supported Research

Issued by: Office of The Director, National Institutes of Health (OD)

Purpose: NIH is committed to increasing its focus on the health of American Indians and Alaska Natives (AI/AN) through enhancing capacity for research in Native communities, promoting opportunities for the next generation of AI/AN researchers, and disseminating transparent and culturally responsive information about NIH and biomedical and behavioral research.[i] This Supplemental Information to the NIH Policy for Data Management and Sharing (DMS Policy) describes considerations and best practices for the responsible and respectful management and sharing of AI/AN participant data under the DMS Policy. This Supplemental Information was developed in response to Tribal Nations’ input received through Tribal Consultation and public comments from AI/AN organizations and community members, researchers, institutions, data providers and users, research participants, infrastructure developers, and others to further promote culturally respectful and effective research partnerships.

The full notice with additional details may be viewed here: https://grants.nih.gov/grants/guide/notice-files/NOT-OD-22-214.html

Please direct all inquiries to: NIH Office of Science Policy, SciencePolicy@od.nih.gov